NEW MOM/PARENT SUPPORT RESOURCES
Congratulations on your baby and welcome to this amazing club! We know a new diagnosis of Down syndrome for your child can be an emotional journey, but we have a large group of moms and parents who have walked the same path. If you would like to connect with moms/parents in San Diego you can email email@example.com. We have also compiled the below resources for your support.
Down Syndrome Diagnosis Network (DSDN): www.dsdiagnosisnetwork.org
DSDN maintains a terrific FB presence with pregnancy groups and birth groups by birth date. Connect with other parents nationally with kids the same age as yours.
San Diego Regional Center (SDRC): www.sdrc.org
The SDRC provides a variety of services to persons with DS and their families. Services are based on the client’s individual needs and intended to maximize their independence and full potential. Contact SDRC to get an initial assessment and qualify for state services, such as Early Intervention Services.
DS Action: www.downsyndromeaction.org
DS Action was founded by parents, caregivers, medical professionals, teachers and business professionals. Together with the Rady’s Foundation, DS Action established the Down Syndrome Center at Rady’s Children’s Hospital. DS Action provides programs for individuals with DS and their families. Contact them to join their email list. You can also follow them on social media.
Down Syndrome Association of San Diego: www.dsasdonline.org
The Down Syndrome Association of San Diego’s mission is to enhance the quality of life for people with Down Syndrome and their families through support, education and advocacy. Contact them to join their email list. You can also follow them on social media.
Gigi’s Playhouse: www.gigisplayhouse.org/sandiego
Gigi’s is in Pacific Beach. They hold weekly baby music classes, monthly baby sign language classes, and other fun events. Their mission is to increase positive awareness of DS through national campaigns, educational programs, and by empowering individuals with DS, their families and the community.
San Diego Down Syndrome Center at Rady’s Hospital: www.rchsd.org/programs-services/down-syndrome-center
The first appointment is typically around 6 months and then once a year. They have specialists in all areas, provide a comprehensive checkup, and serve as a wonderful supplemental support in addition to your child’s pediatrician.